Weebly Wobbly

Safely Home

2nd Surgery and Balloons

Nana and Papa Nick sent balloons

We made it safely home and it was a smoother ride for Christopher. The first surgery helped us be prepared and we knew what to expect. The only thing we didn’t anticipate was how weak and wobbly he would be this time around. It makes sense; he doesn’t have a good hip to stand on. This time we have a wheelchair and it’s a good thing. We managed the last month without one, but making any trips out the home were done with the motorized cart from the store. Have you ever seen a 10 year old on a motorized cart? There is a reason you have to wait until 16 to receive a driver’s license.

Making Memories and Friends
Perthes may stink, but the folks you meet along the way will touch your heart forever. Our last night at the HP house, we met the Knezic, Dierkisling and Abraham families and many other families that I only know the child’s name. It’s amazing how overnight we gained a family — the Perthes family. Where else can you meet folks going through the same thing your family is experiencing? It’s great for our kids and wonderful for the parents. It’s terrific to have a sounding board to express your fears and concerns. Each one of us have each others’ back and that is rare to find even in normal day-to-day life.

Some of the children we met at the HP house during the first surgery in March; they are still there. It’s amazing how these children are so resilient and have a great attitude. I saw this ten years ago when I worked at a children’s hospital. This experience will forever change Christopher, his brother and us.

Cleared for Swimming
Christopher will be on a swim team this summer.  Dr. Standard thought it was an excellent idea.  I’m still skeptical of how this will all work.  Practices start this week and he cannot walk very far and has a crazy penguin limp walk.  I know it will all work out.  Last night was a very rough night with a lot of tears and pain.  We are looking forward to seeing the other side of Perthes; where we are running and have our childhood back.

I Won’t Let Go
I heard this song and it captures the struggles of going through Perthes.  As parents, we want to protect our children and we’ll never let go.  It’s a physical and emotional battle. I find it hard to listen without shedding a tear or two.

It hurts my heart
To see you cry
I know it’s dark
This part of life
Oh it finds us all
And we’re too small
To stop the rain
Oh but when it rains

I will stand by you
I will help you through
When you’ve done all you can do
And you can’t cope
I will dry your eyes
I will fight your fight
I will hold you tight

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1 Response to Weebly Wobbly

  1. Jennifer Jones says:

    I love that song, Stacy. I cry my eyes out when I hear it!

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