Houston, We have Lift Off

A lot has happened since I last updated this blog. Christopher blasted off to Mars, he rode seven miles in the Save-A-Limb fundraiser in Baltimore and we saw Dr. Standard.

Blasting Away

Blastoff Assembly

Blastoff - Christopher is in the 2nd row, first kid

Christopher spent his eleventh birthday blasting off to MARS. His school has a 8 week program called WISE that allows 12 boys and 12 girls to simulate a mission to Mars. Christopher had to write an essay to be eligible for the drawing and I was preparing him that he might not be selected. I don’t know what I was worried about because he made the first mission. They had to make their spacecrafts from trash bags that they inflated with air. It took up an entire classroom. The astronauts had to grow crops for food, change out fuel cells and go on moon walks. It was really cool! Also, a real NASA scientist came to visit the kids and send them off to space. He had a great birthday even though he fell. Then, I stayed in mission control until 1:00am because I promised I wouldn’t take him for x-rays on his birthday. There is a reason my hair is going gray but that’s what hair color is for, right?


CMAC at Save-A-Limb Ride - 10-22-11

We went to Baltimore on October 19, 2011. It was an uneventful flight for once. Christopher raised $6,000 for the event. I have to give a BIG THANKS to all of my family, friends and co-workers that made it happen. You gave us the biggest Christmas present of all – hope! The money raised goes back to the physicians at Sinai Hospital that gave us a chance at a normal life. We hope to one day know the cause and cure to Legg-Calve Perthes Disease. It’s a long journey. Christopher surprised us all by going seven miles on the bike ride. All of his friends did a terrific job and they had a lot of fun bonding and playing at the Hackerman Patz house.

Dr. Standard said…
For the first time, Christopher heard what I already knew. We were inches away from the fixator. It could still be our future if we don’t keep the range of motion. It was quite a motivator to keep those stretches going even though we are all tired of them. Eleven months is a long time to keep up such a regimen. (December 30 is our one-year anniversary of knowing that we had perthes even though we have been dealing with it since June 2009).

Dr. Standard said Christopher’s left hip is still showing bone regrowth and the right is still frozen in time. He also said Christopher can start to lightly jump but he still has to wear the brace at night. That was Christopher’s breaking point. He really wants to be rid of the Scottish Rite braces but its not time yet (at least he only wears them at night). Dr. Standard also released him to modified P.E. Christopher fell the first day but luckily fell on his hands. He told me not to worry because it was good to feel normal again.

Christopher has made sweet lemonade out of sour lemons this year. We couldn’t be more proud of him. He is making straight A’s and has channeled his energy into being elected for Student Council, WISE, FISH club, swim and boy scouts. He is busier now than ever before. A teacher’s son met Christopher the other day at WISE and said he was impressed with Christopher’s ‘can-do’ attitude. He said he knew Christopher was in pain but that nothing was going to stop him. I know he was right, Christopher will never give up!

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3 Responses to Houston, We have Lift Off

  1. Heather Sibley says:

    Stacey ,
    Thank you for sharing Christopher’s journey in print. None of us could ever imagine the details that y’all deal with on a daily basis ,like the stretching regimen. I pray that God continues to bless
    Christopher and all of you with continued Hope and constant improvement – even if they are baby steps!

  2. mrsoulmark says:

    Hang in there, Christopher! Merry Christmas from the Johnson Family!!!

  3. Haidee says:

    Keep it up, Christopher! You’re doing an awesome job!

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