Sometimes no matter how hard you fight, you can still lose the battle but we refuse to lose the Perthes war. We were starting to feel we had won but Perthes has reared it’s ugly head again. It’s relentless on our Christopher.
In late July, we received the AFO foot orthotic for his left foot. It made it easier for him to stand and begin physical land therapy. It has been intense and grueling but he has worked very hard and told by the staff that he is the hardest working patient there. In true Christopher form, he continues to smile even though taking one step without crutches is a leaning battle. First we were told it was his foot that was slowing him down. Now we are told it’s the hip. He had the worst physical therapy measurements since this journey began. He’s a minus 3 on his abductors and adductors, which is not good at all. Then, the last two days, he can barely move. Every motion is a struggle and it just breaks our hearts. He says it worse than before the surgery.
Dr. Standard told us in his last report, in July, that Christopher could start to run and I promptly wrote him back and said ‘we are still not walking’. It’s the disadvantage of having our good physician so far away. With Christopher’s last PT report, it got his attention and we wants to see Christopher immediately. That’s the part that freaks us out but we know God is in control and has Christopher in His hand. The week of August 19th Christopher will undergo his 8th surgery (not all perthes related) and have his trochanter screws removed and botox injections to improve his range of motion. I’m ready to get off the Perthes roller coaster but we have one more big hill in front of us. We’ll attack it like we always do – with faith, love and looking up to Him.