Tag Archives: Save-A-Limb

A True Reflection

I look at the little boy in the banner of this blog and remember clearly how this all began. I would have never in a million years thought we would be in a long battle against Perthes. In the beginning … Continue reading

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Catching Fire

Laying Low It was a wild woman on fire week. Christopher was in immense pain over the weekend. I didn’t even ask if we needed x-rays, I just took him to Children’s Hospital and called Dr. Standard along the way.  … Continue reading

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Groundhog Day

Good Report Christopher and I went to Baltimore for his post-op appointment and Save-A-Limb.  His check-up was so-so. It was the first time we saw concern on Dr. Standard’s face. I’m hoping it was due to the sleep deprivation of … Continue reading

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Our Second Home

Baltimore Bound Christopher and I will leave next week for Baltimore for the follow-up appointment for the head splitting osteotomy and the fake ligament as well as the Save-A-Limb ride. I would like to say that seven weeks post-op that … Continue reading

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Half Way There

Reality Bites Two wheelchairs, three walkers, two sets of crutches, three Scottish Rite braces, one abduction brace, five abduction pillows and two wheelchair ramps – that’s what you accumulate after six years of living with Legg-Calve Perthes. We have enough … Continue reading

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Expect the Unexpected

Time to Leave Christopher was discharged on Friday from Sinai Hospital even though he is running a fever. I’m told this is normal but time will tell. A lot of things had to happen before we could leave the hospital … Continue reading

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Sooner or Later

Today was a very rocky road. Christopher was supposed to be discharged from the hospital but that didn’t occur. He had a high pain level day but he also walked for the first time. We were waiting on the Scottish … Continue reading

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